The Learning Health System in Europe


The Learning Health System in Europe 


                             International conference
                      SEPTEMBER 24th + 25th, 2015
                                 Brussels, Belgium



A conference organised by TRANSFoRm, EuroRec, ECRIN (Heinrich-Heine University)

Go to the After-Conference Web site / Nach-Konferenz Webseite:


Participation was free.  Over 135 participants registered for the conference.


Day 1: Thursday, 24 September 2015

Welcome, Registration and Coffee | 9:00 – 10:20

Welcome and Introduction (B. Delaney, D. Kalra)


Sustainability Debate | 10:30 – 12:15

Sustainability and Business development in the LHS

  • Business model innovation and Simulation (D. Dupont, D. Kalra)
  • Sustainability obstacles and opportunities when operationalising EHR4CR Services  (B. Claerhout)
  • A new Institute to Support sustainability of European R&D (D. Kalra)
  • EuroRec Quality Criteria and Certification of EHR Systems (P. Coorevits)
  • Interoperable eHealth Cross-Border Services (H. Martins)
  • Role of Patient summaries in the LHS: Trillium Bridge Project (C. Chronaki)
  • eHealth strategies and Roadmaps supporting care and rare disease policies (Z. Kolitsi)

Lunch Break | 12:15 – 13:15

Keynotes | 13:15 – 14:15

International perspectives

  • The LHS – perspective from the US (C. Friedman)
  • The LHS – perspective from Europe (F. Paoli)

Coffee break 14:15-14:45

Presentations | 14:45 – 16:30

Knowledge translation in the LHS

  • Ontologies and the LHS (M. Musen)
  • Interoperability assets for continuity and shared care - heart failure example (V. Stroetmann)
  • Semantic data platform in healthcare - Semcare (P. Daumke)
  • TRANSFoRm Approach to integrate EHR Systems and data (M. McGilchrist)
  • Semantic interoperability in EHR4CR (C. Daniel)
  • EMIF (R. Verbeeck)

End 16:30

Day 2: Friday, 25 September 2015

Wake-up coffee 8:45-9:00

Data privacy and data security | 9:00 – 10:30

Data privacy and security in the LHS

  • EHR4CR solutions for privacy protection (B. Claerhout)
  • HIPAA, US experiences with privacy protection (K. Peterson)
  • TRANSFoRm zone model for privacy protection (W. Kuchinke)
  • IMI code of practice for the secondary use of health data (A. Bahr)
  • EMIF Ethical Code of Practice (J. Addison)
  • Patient attitude to privacy and research (P. Singleton)

Knowledge | 11:00 – 12:30

Knowledge Translation and Decision Support in the LHS

  • Decision Support for interventions in the LHS (C. Friedman)
  • TRANSFoRm Decision Support for diagnosis (O. Kostopoulou)
  • TRANSFoRm extensible model for diagnostic evidence (D. Corrigan)
  • CareWell (V. Stroetmann)
  • Improving quality of care with routine data: the perspective of a statutory health insurer - The impact on LHS (C. Ruprecht)
  • Health Research (J. Moore)

Lunch Break | 12:30 – 13:30

Clinical trials | 13:30 – 14:45

Facilitating clinical trials

  • CDISC and clinical Trial Standards in the LHS (R. Kush)
  • Pan-European platform for the re-use of EHRS-EHR4CR Champion Programme (M. Sundgren)
  • TRANSFoRm clinical trials (A. Andreasson/T. Arvanitis)
  • Provenance and GCP for real world clinical trials (V. Curcin)
  • Using health data for innovative trial design (S. Dollow)

Coffee break 15:00-15:15

Big Data   | 15:15 – 16:00

Big Data and clinical research data

  • Big Data (J. Brown)
  • EMIF - the European medical informatics framework (B. Vannieuwenhuyse)
  • TRANSFoRm and genotype-phenotype studies using Primary care data in Europe (H. Bastiaens)

Panel Discussion  | 16:00-16:30

European Institute for Innovation through Health Data  | 16:30 – 16:45

(D. Kalra) 


Closing remarks  | 16:45 – 17:00

End 17:00



Agenda of conference as pdf document


A conference organised by TRANSFoRm, EuroRec, ECRIN (HHU)

Participation is free. Please register for the conference here:



Hotel Bloom, Brussels

Level -1, Forum  


Phone: +3222206611

W-LAN available



Introduction (française)



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