Center for Congenital Hyperinsulinism, Hypoglycaemia and Rare Forms of Diabetes (ZHHD)

At the ZHHD, we treat up to 200 newborns, children and adolescents with rare blood sugar regulation disorders every year, making us one of the largest centers of its kind in Europe. We offer our patients comprehensive diagnostics, therapy and long-term care. In doing so, we always draw on the latest state of research, which we actively help to shape.  

Every child is unique - this is especially true for children with rare diseases. It is our aim to treat your child as best as possible and to support your family in the daily handling of the disease. In addition to the medical treatment of your child, we therefore focus on the care of the family. It is important for us to actively involve you in the treatment of your child. For this purpose we at the ZHHD are at your side with a multidisciplinary team of paediatricians, paediatric diabetologists and endocrinologists, diabetes and nutrition consultants, psychologists, physiotherapists and social workers. Inpatients are cared for on our ward KK02, whose staff has many years of expertise in dealing with glucose regulation disorders.

The ZHHD is integrated into the Düsseldorf Centre for Rare Diseases (ZSED), which combines the expertise and competence of a wide range of specialist disciplines and is linked to specialists from all over North Rhine-Westphalia via the NRW-ZSE network. Together we are qualified contacts for you and your child.

The treatment of children with congenital hyperinsulinism and rare forms of diabetes is constantly changing. It is our special concern to help shape these developments. To this end, we are in close contact with self-support groups and are active nationally and internationally in the research of these rare diseases. Together with you, we can improve the care of children with rare blood sugar regulation disorders in a forward-looking way. 

Treatment focus   

  • acute treatment and long-term care of children with rare disorders of blood sugar regulation.   
  • further diagnosis if a rare blood sugar regulation disorder is suspected.   
  • specific, individual treatment taking into account the latest scientific findings.  

Disease Patterns   

  • congenital hyperinsulinism (KHI)   
  • rare forms of diabetes (e.g. neonatal diabetes, MODY, syndromal diabetes)   
  • insulin resistance syndromes
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